This is worthy of my first post in half a year--

the spider is: thoughtful
--though I didn't write this. angel_fly did.
I love angel_fly.
Music *IS* Love
by Angelina Adams
With each of my children, our first bonding moments involved music. A fact I’m sure comes as no surprise to people who know me well. I am always singing, dancing or moving through life with a constant background accompaniment of music in my mind that even dictates the rhythm of my steps as I walk across a room. When the nurse would hand me a tiny warm bundle of blankets, I would gaze down into a precious little face and be captivated by enormous blue eyes. My emotions would overflow and the only way I could cope with, or express, them was to sing to this intense little being in my arms.
This wasn’t just a lullaby. This was a bond. It was a softly sung expression of a deep soul to soul communication. In this moment and in this gaze there would be recognition and clicking in place of something that was right. A belonging and joy. Throughout their lives I would sing them to sleep, sing them through pain, and sing silly songs for learning and bouncy songs for dancing. The life I have lived with my children was always filled with music that accompanied the emotions of the moment.
Quite often it was the only way I could deal with just how much I loved them. When I just couldn’t contain it inside anymore, I would brush the hair from their forehead and sing them to sleep. Then I’d keep singing long after their eyes had closed simply because I couldn’t bear to stop telling their hearts just how much they meant to me.
And then Michelle was born.
There was no handing me a small bundle of blankets. There was an incubator in a darkened Neonatal Intensive Care Unit with a tiny body in it with tubes and wires all over the place. I wasn’t allowed to hold her and could hardly get close to the tiny plastic container for all the machines gathered around it, beeping and blinking and pulsating as they kept her alive. But there was a tiny space between the head of the warmer and the wall where I was allowed to stand. The top of her head was free of tubing and there was a soft tuft of reddish hair where I was allowed to very gently stroke my fingers along this IV free zone. I asked the nurse if it was okay to sing in this hushed, dark room. She looked at me and said I could if I wanted, but it was very doubtful she could hear me.
It was the first time I was told my daughter might be deaf. Of all the complications and health issues I’d been coping with as doctors received test results, this was the one that hit my heart the hardest. This was the one that almost broke me. I already understood that being Michelle’s mother was going to be so different than with Christina, Donovan and Chance. But to have this taken from her and I just seemed too cruel to contemplate. I needed this bond, this expression of love. It may sound silly, but I was suddenly afraid that if she couldn’t hear my song - she would never truly know me. So as a sad nurse shook her head and walked away, I leaned over the warmer and began to sing “You Are My Sunshine” to the oh so tiny baby girl fighting to stay alive.
Over the three months that Michelle and I lived in the ICU, the regular nurses grew accustomed to my insistence on being allowed to hold my daughter (tubing, IVs and all) once a day and sing to her. Some of them eventually began asking if I would sing when they had to deal with a difficult patient in the next room who would become calmer while I was singing. But every few days, there would be someone new on the unit who would ask why I kept singing to her when it was obvious she couldn’t hear me. The obvious being the fact that she had failed the startle reflex test. She never responded to sudden, loud noises and never turned her eyes when someone would speak to her. Eventually I stopped trying to explain why I needed to sing to Michelle and would just shrug, smile, and keep singing. I’m sure none of them had any idea how discouraged I was from their questioning of my actions.
But then one day, as I sat and sang and cried one of the nurses who worked with us often came into the room to check the monitors. She was working with a different patient that day, and I’d just been through another “why do you sing to her” conversation that she had overheard. She stood there for a moment, and then said “Have you noticed how much her stats improve when you sing to her? Every time. You sing and her oxygen saturations go up.” She turned and left, but I felt vindicated. I felt approved and encouraged. I gazed down at a tiny face I could barely see for the intubation tubing and the tape holding it in place and felt grateful - and I sang.
For years we have done the ‘is Michelle deaf’ dance. Visits to audiologists at various hospitals and clinics kept coming back inconclusive. Her schools have often been frustrated by her lack of language skills or any perceivable response to spoken directions. I would point to how much she loves music and be told that deaf children often enjoy music because of the vibrations. I kept trying to explain that I was sure it was more than that. I was sure she heard sounds, she just didn’t interpret them the same way we did. Only the parent of a special needs child will understand the way ‘specialists’ treat parents when they believe we are in denial of our children’s handicaps. There is a pitying smile followed by a way of no longer listening to our opinions that is both infuriating and disheartening. After a while, a tiny voice of doubt enters our minds. Maybe they are right, and I am wrong. Especially when each specialist says the same thing the last one said.
And then there are days like today.
After 17 ½ years of being told the same ‘inconclusive - probably deaf’ diagnosis, I was finally told conclusively that my daughter can hear. Not only that, she has a nearly normal range of frequency perception. However, it appears there is a dysfunction in the speech processing center of her brain. She hears speech, but doesn’t understand what it is. However, music perception is located in a different part of the brain.
Music is one of the only “sounds” Michelle can hear, interpret and understand.
While talking to the audiologist after Michelle’s testing she said that for Michelle when she hears music, she looks around for me. For her, the definitions of music, mama and love are all the same. They are all the same “word” for lack of better way to express what her mind understands.
So basically, all these years as I have been singing to Michelle and believing she was hearing and responding, I was right. And if I’d allowed even one of those nurses or professionals talk me out of singing to my ‘deaf’ child, I’d have taken away the one thing Michelle could understand. Music.
Never again will Michelle placing her hand on my throat be just her way of asking me to sing. Now I know it is also Michelle saying I love you. What an amazing gift for God to have given her and I. Can you imagine there being only one sound in the world you are able to understand and make sense of what you are hearing, and it is music? Now add on top of that the fact that what you understand music to be – is love.
What a beautiful world my baby girl lives in.
Michelle in a field of bluebonnets.






